Information and Support for MPD's

Our Personal Journey With a Myeloproliferative Disease

Empathy Works

I came across this blog from a poster to the MPD Newsletter.  He is Michael Goldstein, a Health Care Professional.   

Michael says, "EmpathyWorks Focuses on the value and impact of empathy and related skills, particularly in health care settings. Topics will include clinician-patient communication, patient-centered care, patient activation, health behavior change and clincian-patient relationships."

Please visit his site, and I think you will like his blog, and what he has to say. 

http://members.aol.com/mpdsupport/

Support through an email group

 

http://www.answers.com/topic/myeloproliferative-disease?cat=health

 

http://www.mdanderson.org/diseases/mpd/

M. D. Anderson

 

http://www.cancerbackup.org.uk/Aboutcancer/Pre-cancerousconditions/Polycythaemiavera

Polycythaemia vera (PV) : Cancerbackup

 

http://rarediseases.about.com/od/rarediseasese/a/thrombocythemia.htm

Essential Throbocythemia

 

http://rarediseases.about.com/od/rarediseasesi/a/idiopathicmyelo.htm

Idiopathic Myelofibrosis

 

http://rarediseases.about.com/od/myeloproliferativedisorder/Myeloproliferative_Disorder.htm

Myeloproliferative Disorder

 

Chronic Myelogenous Leukemia

Mayo Clinic
 
 

http://www.leukemiamichigan.org/

This foundation is for Adults as well as Children, and

is a wonderful resouce for help.  Please contact your

local Leukemia Foundation. 

Michigan just happens to be ours.

 

http://www.carepages.com/leukemiamichigan

CarePages Home 

Make your own family page here.  A great resource for

keeping family informed about a loved ones illness and progress.

 

 

 

 

 

 

 

DISCLAIMER

Most of the things I mention about Myeloproliferative Disease, and any other medical stuff is only what I have read and researched on my own, and with conversations with our doctors. In no way am I giving advice or promoting any site in particular. This is only things we are going through now as a family, and this site has no other purpose.

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New Link Added to Links Page 8/18/09

 Empathy Works

 A blog you will be interested in.

 

 Also--

A must have book for the caregiver and patient

 A Husband, A Wife, & an Illness,

Living Life Beyond Chronic Illness

By Dr. William July and Jamey Lacy July

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